Documentary shows hope for disease with no cure
March 8, 2010 at 8:05 a.m.
Updated March 7, 2010 at 9:08 p.m.
Imagine waking up every day and losing the function of another muscle.
Amyotrophic lateral sclerosis patients face this fear daily. ALS is a degenerative motor neuron disease which slowly paralyzes the victim muscle by muscle. The disease becomes fatal when the diaphragm muscles cease to function. Once diagnosed, people are given three to five years to live.
Victorians facing this cruel fate are Craig Fox, Carolyn Shimek, and Bill Hassel. All in different stages of ALS, the patients constantly deal with loss and the new lives created by their disease.
Amazingly, they find ways to live with hope. They find ways to give back to the community, inspire their relatives and guide their children. And now their inspiring stories will be shared in a full-length documentary by filmmaker Drew Stewart.
The film will premiere on Dec. 1 at 5:30 p.m. at the Leo J. Welder Center for the Performing Arts. You will see the Foxes, the Shimeks, and the Hassels find hope in the darkness of ALS and discover the true meaning of life by living in the face of death.
Related: Film premiere details