Family raises awareness of rare genetic disorder (w/video)

Laura Garcia By Laura Garcia

Dec. 21, 2017 at 9:21 p.m.
Updated Dec. 22, 2017 at 6 a.m.

Jadyn DeBord, 5, works on communication skills with Speech Pathologist Amanda Luddeke, at Building Kids Steps in Victoria Monday. DeBord is nonverbal and uses the tablet to talk. She has been diagnosed with Syngap1-related intellectual disability, a rare genetic disorder.

Jadyn DeBord, 5, works on communication skills with Speech Pathologist Amanda Luddeke, at Building Kids Steps in Victoria Monday. DeBord is nonverbal and uses the tablet to talk. She has been diagnosed with Syngap1-related intellectual disability, a rare genetic disorder.   Evan Lewis for The Victoria Advocate

A guitar signed by the rock band 3 Doors Down will be raffled in Yoakum this weekend to benefit research of a rare genetic mutation called Syngap1.

Brad Arnold, lead singer of the band known for its song "Kryptonite," offered the autographed electric guitar to the family for the fundraiser.

JoJo and Jesse DeBord, of Yoakum, are trying to raise awareness about the rare disease. Their daughter, Jadyn, has Syngap1-related intellectual disability and struggles with daily seizures.

JoJo DeBord said they decided to organize the raffle to celebrate her daughter's 5th birthday, which was in November.

Syngap1 is most often associated with intellectual disability, epilepsy and autism spectrum disorder.

So far, 250 people worldwide are known to have the genetic mutation.

The DeBords made a video about Jadyn's experience and are selling raffle tickets with all proceeds going to Bridge the Gap - SYNGAP Education and 4Research Foundation.

Tickets are available on the Double J Saddlery website, a leather business started by Jesse DeBord's parents.

This is the third fundraiser the family has organized for the foundation.

JoJo DeBord said they are fortunate to have the support of the community and that even the mayor of Yoakum, Annie Rodriguez, came by to pick up raffle tickets to sell at the office.

Earlier this week, Bill Lopez with the Yoakum Chamber of Commerce dropped off a large donation for the fundraiser.

The family hopes the donations raised will help the organization fight for the cause, which will help children with the rare disease.


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